Pulmonary appointment #2

Very first time in the my lung cancer project, we saw enlarged ct-scanned my lung images and he talked about them friendly and clearly. The biggest cancer tumor, was about an inch, on my right bottom and back of my lung and some smaller ones around my color bone and throat. And hundreds of small little white dots all over the both lungs, look like stars in the sky in Ohio. He said that my lung cancer looks very unusual. (Actually my very first pulmonary doctor in my neighborhood hospital diagnosed me as not cancer after a week hospitalization in earlier May. He said it did not look cancer to him. Hello?! ) There was a small darkest part and that was how healthy lung should look like.

Tagrisso could kill all cancer cells just when it stops working hidden small cancers usually come back. “IF” tagrisso works years on me, I could have a good chance to live longer, so that the way to cure lung cancer could exist( just not yet) since I am still young and strong, have a lot of energy, all other organs look very healthy at this point. Hope that happens to me.:)

He said to me that eat whatever I can and keep the body weight so my body can fight inside of me. Though I lost appetite for side effect of tagrisso, I am feeding myself and not loosing weight last weeks. Good job myself :)

Went to eat meat balls at IKEA, Brooklyn.

Went to eat meat balls at IKEA, Brooklyn.

肺専門医に、息子と2人で会って来た。テレビドラマで見る癌宣告場面みたいな、大きな胸部ct scanイメージ見て、初めて説明された。3cm位の腫瘍が右下後ろに1つ。後、1cm位のが鎖骨上リンパ、喉周りに有る。後は両肺中に夜空のピカピカの星みたいに100以上の小さいのが散りばめられてる。平常の健康な肺はこんな風に黒く見えるんですって言われた黒い部分は、横にほんのちょっとだけ。ステージ4の5年後の生存率5%以下って言うのが有るんだけど、私はどうかと聞いてみた。この数字には一切の治療も施せず亡くなる人、体力の落ちた高齢者も多く含まれる。一方で、私は既にタグリッソと言う新薬が使えている、若く体力が有る、他の内臓は今の時点では健康で有るので、新薬で数年生きれれば、その間に根治方法が見つかるかる可能性が有り(まだ無いけど)、長く生きられる可能性は大きいと。えっと、可能性は有るって事で :) 現実を見ながらも前向きにいくよ。

Pulmonary appointment

This is my first appointment to pulmonary doctor at the hospital where I see my oncologist, who is lung cancer specialist. It seems like very common to have oncologist snd lung doctor. I am very curious how this meeting will be different from oncologist. My son will come with me as he did all others.

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肺癌の専門家医には既に数回会って満足しているので、PCP、肺専門医も同じ病院で決める事にした。非常に猥雑な保険手続き時間も短縮されるだろうし、このコロンビア大学病院来てから、事が非常に早くスムースに進むからね。肺癌患者は、癌科と肺科の医者両方に会うのは、極普通の事らしい。肺専門医と肺癌専門医では、どんな診療の違いがあるのか興味シンシン。

Thanks!

Some of members who played together in the band, KureKure, at the art school in Tokyo sent me cool Japanese foods, I meant lots of different and new kinds for me who resides in NY for decades, some are very locals, love them all super thanks! This is the one I was attracted honestly in a second, Amanatto, dried sweet bean that is also from very local from Yamagata prefecture, where all my families are originally from. The drummer at the band, aka Darle, Who is now the president of the local construction company, Yoshida Kensetsu, in Yonezawa area, must be the one who picked this for me. Love you!

Lightly sweetened, cooked and dried red soy beans, Beni Daizu.

Lightly sweetened, cooked and dried red soy beans, Beni Daizu.

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東京の美大時代4年間一緒にバンド「クレクレ」でプレイしたメンバー数人が、マジ良い感じの食料送ってくれたぁ。サンキュ! 勿体無いからケッチって食します:) 中でも、開封と同時に私の肺癌の胸にぎゅっと刺さったのが、山形の赤大豆甘納豆! 甘さ控え目で病気の私でもがんがんいける! ああ、嬉しい!私甘納豆大好き:) 今米沢で吉田建設社長やってる、ドラマーのダールのチョイスかと。サンキュ〜! ラブ ユー!

Meeting new PCP today.

I needed to change my PCP. I love my oncologist team at Columbia medical Center a lot. Because my PCP is in different net work, takes extra waiting time to get  referral that is required to see new doctors each time from my insurance company. As a result, it cause over 2weeks of delays for me to start treating my lung cancer stage 4!  PCP who takes my insurance in Columbia network should save time! Today, I will ask to choose a lung doctor for me and make referral for a nutritionist for my consultation, which originally requested over 2weeks ago and my old network was so slow to process that made me mad! Don’t you want me to get better?!  今日、新しいPCPに会います。PCPとは、何か健康に気になる時に、先ず会う医者で、必要に応じて、専門医を紹介してくれる。

今回、肺癌と診断されて、初めの1週間は、感傷的になる暇も無く(1月経った今もまだ)、とにかく何か知ってそうな友人にテキスト/e-mail を書いた。「何をしたらいい?」って。健康が取り柄だったので、出産と年次健康診断しか病院に行ったこと無かったので。大きな苦難を乗り越え(!)95%諦めていたセカンドオピニオンが実現し、結局それが私の選んだコロンビア大学病院肺癌専門医だ。

 

が、私が普段健康診断に行くPCPとネットワークが違うため、直ぐ飲みたいタグリッソの処方箋出来るのに待たされ、肺専門医、栄養士、生活療法師に至っては、私の肺癌専門医と繋がりのない人材しか選べない?! 少なくとも、今回コロンビアでの経験は、色んな意味で、今まで私が受けていた医療より質が格段に上質な事が分かったので、コロンビア内で私の医療スタッフを固めようと決めた。一度コロンビアに入ると、自分が外から受けるNY特有のストレスが大きく減るのです。人材が優秀で、患者の為に動いてくれ、事がスムーズに進むので。もう既に肺癌ステージ4で、十分病気なので、外からのストレスは出来るだけ減らしたい! これ以上私を病気にしないで!!と言うわけで、PCPを私の肺癌専門医ネットワークから探そうと! ま、一度マジで電話口で泣いた程、一悶着はあったけれど、どうにかシステム上は、無駄な待ち時間無しに行けるのでは無いかと思ってる。 病気に対して、前向きに戦う意思大有りです。

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QAI17

What Dwelling means to you?  A space could be divided into this side and the other side by a piece of wall. What dose this side mean to you? What about the other side?  

When I still lived in my parents house that was a newly built large modern house in suburban Tokyo, I did not enjoy being there.  It was such a great feeling to live in my own old small studio apartment with sharing vault toilet.  You never know what makes someone happy.

ぺらぺらの紙切れで空間を区切ってみる。あっち側とこっち側。 あなたにとってこっち側はどんな意味がある? あっち側は? 東京郊外で新築のそこそこ大きな実家に住んでいたけれど、20歳の頃、汲み取り共同トイレの小さなアパートに引っ越した。親の立場になれば色々思うことはあるけれど、私の立場になって思えるのは私だけなので。引っ越してよかった。その数年後には、日本を出てしまったわけだけれど。

Over two decades ago, I started to collect junkmails to make handmade paper mache. Plastic windows are bi-products of it. The nature of the material: transparency, strength, flexibility, sound, colors and designs which reflect the envelopes’ original purposes, has led me continue my investigation. 20年以上前、頼みもしないのに毎日届くジャンクメールを使って、紙粘土を作っていました。その副産物として生まれたのが、宛先を見せるための窓。軽いのに意外と丈夫、情報保護のためのデザイン、そして良い音を出してくれます。紙粘土より、窓の方が使いたい機会が増えて来ちゃいました。

Over two decades ago, I started to collect junkmails to make handmade paper mache. Plastic windows are bi-products of it. The nature of the material: transparency, strength, flexibility, sound, colors and designs which reflect the envelopes’ original purposes, has led me continue my investigation. 20年以上前、頼みもしないのに毎日届くジャンクメールを使って、紙粘土を作っていました。その副産物として生まれたのが、宛先を見せるための窓。軽いのに意外と丈夫、情報保護のためのデザイン、そして良い音を出してくれます。紙粘土より、窓の方が使いたい機会が増えて来ちゃいました。

All insides of envelopes create interior of the dwelling. Most of windows show their original security camouflage design as their frame. If you could be at the site, would hear the sound the windows make. 情報保護のための内側面を合わせてこっち側を作りました。あっち側から見れば、こっちがあっち側です。

All insides of envelopes create interior of the dwelling. Most of windows show their original security camouflage design as their frame. If you could be at the site, would hear the sound the windows make. 情報保護のための内側面を合わせてこっち側を作りました。あっち側から見れば、こっちがあっち側です。

QAI event went to 4pm. My project has extended till 8pm with potable lights. Yoko and Mayuko, Thank you for your great support till late this night. ライト持参で、夜の公園にしばらくいることにしました。付き合ってくれた、まゆこさん、ヨーコさん、感謝です。

QAI event went to 4pm. My project has extended till 8pm with potable lights. Yoko and Mayuko, Thank you for your great support till late this night. ライト持参で、夜の公園にしばらくいることにしました。付き合ってくれた、まゆこさん、ヨーコさん、感謝です。

It is great to be able to participate QAI17, Queens wide Public Art Event as my 4th year. Thank you. Yvonne Shortt, for your great effort to make it happen again.

It is great to be able to participate QAI17, Queens wide Public Art Event as my 4th year. Thank you. Yvonne Shortt, for your great effort to make it happen again.

First Presentation at F2F.

I had my presentation at F2F2017, Face to Face Conference,  at The City College of New York this past Thursday. I enjoyed sharing my experience of 4 years of inclusion residencies with other teaching artists and administrators,  through a hands-on workshop.  

Maya Singh, Marquis Studios, thank you for your great support!

Maya Singh, Marquis Studios, thank you for your great support!

Sketch Book binding for introduction. How many pages will we get from 10 pieces of paper?  Introduced tools I use in the inclusion residency. 

Sketch Book binding for introduction. How many pages will we get from 10 pieces of paper?  Introduced tools I use in the inclusion residency. 

Good to learn ourselves as an industry. 70% of Teaching Artists are female. We surprisingly found that male TAs make higher income than female TAs according to TA Compensation Survey.  Why?  This will be published.

Good to learn ourselves as an industry. 70% of Teaching Artists are female. We surprisingly found that male TAs make higher income than female TAs according to TA Compensation Survey.  Why?  This will be published.

I feel like surrounded by poems and poets in my life though I’ve definitely grown as a bad writer since my young age. Some teachers did not understand me.

I feel like surrounded by poems and poets in my life though I’ve definitely grown as a bad writer since my young age. Some teachers did not understand me.

The City Collage of New York has a beautiful campus. 

The City Collage of New York has a beautiful campus. 

GumHearts Project and 5 Free Workshops for Valentine’s day Market.

GumHearts Project, Tattoo Stickers, Greeting Cards, Tote bags, note books, for 5 days Valentine’s day Market at Made In Queens,.  I will also run five Pop-Up card inserts workshops, FREE for whom purchased GumHears Greeting Cards,  $5 material/tools for whom with own cards. Fun and open ended workshops for 10 and up. Pre-register now and come to work wth me. 

GumHearts Greeting Project + lots of local mades will be available at Made In Queens Feb 10-14.

GumHearts Greeting Project + lots of local mades will be available at Made In Queens Feb 10-14.

Business hours and workshop hours:

Friday, February 10th - 4pm to 8pm   ---   Pop-Up card insert work shop 4:15-6, 6:15-8

Saturday, February 11th - 11am to 3pm ---   Pop-Up card insert work shop 11:15-1, 1:15-3

Sunday, February 12th - 11am to 3pm 

Monday, February 13th - 4pm to 8pm   ---   Pop-Up card insert work shop  6:15-8

Tuesday, February 14th - 11am to 3pm

If you are in NYC this Saturday, 21st.

Officially, the market was canceled, thank you for being flexible Bushwick Vendors Markets!, I will be participating Women's March in NYC.

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Will you be in Washington DC for the Women’s March?  Great!!!! Thank you for being there!

If you happened to be in NYC like me, why don’t you stop by Bushwick?  

 It seems like 4–10° Rain Showers .  Isn’t great? Grab a cup of hot coffee, go out and take a walk. 

You may find something unexpected. 

January 21, Saturday, 1 PM - 6 PM

Bushwick Vendors Market at The Silent Barn
603 Bushwick Ave., Brooklyn, New York 11206

Bandage Tote Bag. Iron-oned, Pre-washed, Preshrunk. 10oz 100% Cotton canvas. 15” x 15” x 4”. Each Bandage was documented on the street using cellphone camera by Niizeki Hiromi. 

Bandage Tote Bag. Iron-oned, Pre-washed, Preshrunk. 10oz 100% Cotton canvas. 15” x 15” x 4”. Each Bandage was documented on the street using cellphone camera by Niizeki Hiromi.